Wednesday, April 23, 2014

Fear, Depression, and Behavior

I began writing a post a few days ago, but think I’ll scrap it. I really don’t want every post I write while I’m going through this to be heavy, miserable, and sad. Even though that seems to be about the only thing I can feel most days. I want to get better. And despite a difficult, roller coaster past week, I’m feeling better today than I have in a while. So keep reading - this post gets happier at the end.

I’m learning a lot from a workshop I’m taking. There are many parts to enacting positive change in ourselves and others. Think about a poor behavior you know you need to change, know how to change, and know why you should change it, but you just can’t do it for some reason. 

We often believe there is one reason behind someone’s choice to avoid making positive changes. For example, if someone wants to lose weight, some may assume they either just don’t want to, or they’re lazy. If someone is in an abusive relationship, others may think, why don’t they just leave the abuser? They must not be strong enough/smart enough, etc.

The reality is that there are many factors influencing a person’s ability to change. There are six different categories. As I’ve been digging in to try and understand my illness, I’ve been thinking a lot about these factors and what behaviors I’ve had all wrong. 

I think I’ve blogged about fear before. But fear has been a motivating factor in many of my behavioral decisions. And this hasn’t been just the past few months, but goes back years. It has also tinged all six sources of influence in my life: personal motivation and ability, social motivation and ability, and structural motivation and ability. 

I think my biggest decision making influencer fear. More specifically, it is the fear that I am not worthy of being loved. Most often I feel no self-worth, or like I’m not good enough to be loved. This caused me to withdraw from people, and thus began one of many negative cycles throughout my life. It has certainly contributed greatly to my depression. This fear is causing me to behave uncharacteristically. In reference to the six sources of influence, they have been affected in the following ways:

Personal Motivation – Because I’ve been afraid to try to break free from the depression because I’m worried I’d fail and fall back down – and not be able to get back up, - it’s held me back from even trying. I’ve often thought that I just wanted to quit instead so I wouldn’t have to go through all of that. The idea was so overwhelming, I had no motivation to keep going.
Personal Ability – I’ve felt uneducated on exactly how to overcome the depression, and I’ve been afraid that I just wasn’t capable of actually doing it.
Social motivation – I’ve acted very out-of-character in social situations. Because of the fear of not fitting in, being treated differently, or not being accepted and loved by others, I’ve made hurtful comments to others, or withdrawn and not said much at all.
Social Ability – Although I’ve had plenty of people around me who love me and have wanted to help me, out of fear that they’d get sick of me, sick of hearing about my depressed thoughts, I pushed many people away.
Structural Motivation – This one has to do with rewards. Because I’ve been afraid that in the end, I couldn’t beat this, the only reward I could think of was ending my life and not having to deal with any of it anymore. I also concluded I’d be miserable like this for eternity, but at least then I’d know what my puny existence would amount to.
Structural Ability – This usually refers to tool problems. My tool in this instance is my brain. I can’t tell you how many times over the past few years I’ve thought, “I’m broken”, “What is wrong with me?” “Why can’t I fix myself?” “Something must be really wrong in my head.” Fear that I’m just not “fixable” has kept me from seeking professional help.

With all of these negative thoughts and fears weighing on me, it’s no wonder I can’t just tell myself, “Be cured!” and I’d magically be happy
again. If there is one thing I’m learning from this experience, it’s to embrace those who are struggling – whether it’s an addiction, illness, a crazy amount of stress that is making them act different (angry, sad, etc.) or whatever. No matter what poor or even destructive behaviors they have gotten into the habit of exhibiting, everyone is a child of God and worthy of love. We have no idea what it’s like to live inside their head. We have no idea if there are chemical imbalances, functional issues, or how many things are weighing them down. The bottom line is, each of us hurts sometimes. And as a friend reminded me last night, at the end of the day, all anyone who is hurting wants is a hug and to know they are loved.

So please, reach out to someone you know who is hurting (I’m not implying that should be me – like I said, I’m finally feeling better today), give them a hug, and tell them you love them. And don’t give up on them! As Kermit kept reminding me, things will get better!

Tuesday, April 15, 2014

My name is Mandy… and I am suffering from depression

I warn you this is very raw – it’s a wide open sore right now that has been festering for years, and this is one of my first steps to try and clean it out. It’s also kinda long (sorry, I had a lot to get off my chest). So your encouragement and kind words are welcome. But please don’t tell me what I should’ve done, or what I should do, or what I should try. I know you’d mean well, but right now, it would just make me feel worse – more incompetent, more embarrassed, more ashamed, and more angry at myself for not being able to kick the demons out of my head long before now.

I think it all started when I was a teenager – probably around 13 or 14. As I got older, on the rare nights I was home, I’d shut myself in my room, playing music that added to my sadness as loud as I could, candles lit all over my room, writing poems. And for a little while, I would cut my arms. Not very badly – I’m really sensitive to touch and couldn’t tolerate that much. But just enough so I could only feel that physical pain – not the pain in my heart and head. My low swings usually revolved around hormones and break-ups but never lasted super long. The over-achiever perfectionist in me always won out, and I went to school, work, band, clubs, hung out with friends, and maintained excellent grades.

This pattern has continued through my adult life. But I’ve noticed when it comes to relationships, I tend to always be on an emotional roller coaster. Perhaps because that is when I feel most vulnerable. That is when I feel most inadequate. While these demons in my head have existed for a long time, I’ve done okay at keeping them from getting out of control. There is usually something that has kept be grounded. Outside influences of course affects my ability to overcome it, and I still never stayed down long enough to really admit to having… the “d” word. To me, admitting that I have depression, and admitting I can’t beat it this time on my own, is like one more failure I add to my list. I’ve been able to keep it under control this long, why can’t I now?

True, after Don Queco passed away, I started going to counseling. Things that used to help me break free of the gloom and doom weren’t helping anymore. Like prayer. No matter how hard I tried, I couldn’t feel comfort from the spirit anymore. I figured Heavenly Father just got so tired of my whining or poor choices, that he would just as soon wash his hands of me. I figured I had disappointed Him so much, I was now totally alone.

But then that summer I met Edward. He was kind and compassionate and knew what I was going through. So I didn’t feel so alone. I duct taped myself together and kept going.

I still had a very rocky next year. I lost Don Queco, lost Edward, was trying to finish school, but still felt very much alone and abandoned. Logically, I knew I had plenty of friends and family who loved and cared about me. But when I was in that dark place, nothing broke through. Nothing made a difference.

But then I met Kermit and things got better for a while. I still had ups and downs, but I dealt with them as much as I could. Running seemed to help a lot and I still felt Don Queco watching over me. Now Kermit and I have been together almost two years. And he didn’t run for the hills. Last August when I found out I was being let go from my job, my life turned upside down. Within 9 months, I lost my job, didn’t finish an Ironman, got engaged, got married, blended families, remodeled a house in one month, started a new job that has challenged me in unexpected ways, watched as my husband started a very demanding and challenging new career, got braces, and 12 days ago I sliced my hand while trying to separate some frozen turkey burgers. It may not seem like a big deal, but I haven’t been able to swim or do a lot of the things I’m used to and been in a lot of pain. Starting to feel desperate, I wrote the following poem last week:

Numb
I want to run away.
Leave everything behind.
But how do you escape
your own mind?
I’ve tried everything:
prayer
exercise
pretending
eating healthy
being around people
listening to uplifting music

fake it till you make it.
But the war inside my head
just won’t stop.
The voice taunts me –
“If you don’t stop this,
your husband will leave,
just like the last one.”
“If you were stronger, better,
you would be able to break free.”
“You’ll never be good enough.”
“You’re not worth anyone’s time or help.”
I feel ashamed
of who I am.
I’m afraid
of the consequences
if I can’t overcome.
I’m not afraid of dying,
but of this loneliness lasting
for eternity.
I worry everyone,
especially my husband,
will just think
I’m making it up
for attention.
or think I’m beyond repair
with no ROI.
Everyone around me
is so stressed
with other things –
work, kids, poor health –
I don’t want to add
one more thing to their plate.
So I try to hide.
Try to stay in the background.
I go to work
work out
take care of my kids,
the house.
But I’m tired.
Tired of pretending
and fighting to hang on,
hoping it will all
just go away.
And leave me ALONE!
I have no desire
to try anymore.
Because deep down,
I know I’ll never
succeed – at least not in this life.
20 years of failure, loss, and disappointment
weighs heavily on my weak shoulders.
But even if I died,
Heavenly Father
wouldn’t welcome me
in His kingdom.
I’d just bring everyone down
like here in this world.
I no longer
feel the spirit.
I’m not worthy.
But I know
if I could just feel my Savior’s love,
I could kick
the demons
out of my head.
I’m not worthy of love.
Too broken
to be fixed.
And because I think these thoughts,
I feel even worse.
More hopeless.
It never ends.
I have much to be grateful for
but still feel
worthless.
I don’t want to feel
sad all the time.
I don’t like
hating myself.
What’s wrong with me?!
Why can’t I stop this?!
I can’t sleep without pills.
I can’t get help.
I’m on the clock at work
and can’t make up time
for leaving early.
I can’t quit –
people are depending on me
for insurance
and to pay off debt.
The only thing
I can do
is be numb.
 
That pretty much sums up the dark abyss I’ve been floating around in the past few months. But it keeps getting worse. And unlike times before, I just can’t seem to break through the fog. The stupidest things bring me to tears. Last week I basically worked, ate, trained, and slept. I had no desire to do anything. I didn’t care if my husband left, or if I left, or if I got hit by a car, and I just didn’t want to wake up in the morning. Every night I prayed the two sleeping pills would be enough to keep me asleep forever.

I am fully aware that it is up to me to choose to be happy. It is up to me to act or react in a positive way to whatever is going on in my life. It is nobody else’s responsibility but mine to choose to be happy. I also understand I have irrational thoughts that are lies, like worrying my husband will leave or just be mad at me or think I’m lying. I know he wouldn’t do that. But that’s the depression talking. Like I said in my poem, I have a good husband, good kids, we have good jobs, food to eat, bills paid, a home and family and friends who love us. But for the past couple of weeks, I’ve been so apathetic that not only could I not break free of the negative crap in my head, I had no desire to.

Then early yesterday morning I decided not to work out and get a little more sleep instead. And I had the worst dream. In it, Kermit and I were in school, in my old high school building. We got into a fight about something, and he said, you know what Mandy, this just… I stopped him and said, no, don’t. Don’t say it. Don’t say this isn’t going to work. Don’t say you’re leaving me. I woke up soon after that feeling this awful sense of sadness, anxiety and raw fear. So much so that I felt weak, sick to my stomach. My first thought was, well, this feeling sucks, but at least it’s better than the complete apathy you’ve been feeling. It was like a wake-up call. For the first time in a long time I felt gratitude. I knew I had much to be grateful for, but all I’d felt was sadness for so long. I finally felt something other than the nothing (Never Ending Story…). I told my husband before I left for work how truly grateful I was for him, that I really loved him and believed in him and knew he could do a good job at work. That was the most genuine, heart-felt thing I’ve been able to say for a while. I’ve mostly just been pretending, and feeling horrible about it. I knew I loved people, knew I had a lot to be grateful for, have tried to be encouraging to people, but really felt nothing. Even on my wedding day, I felt nothing but emptiness. And it has nothing to do with my awesome husband. It is the big d word. Depression seems to have a life of its own. A power I don’t understand. I’ve known other people who have had it, but I just didn’t get it. Until now. And let me tell you, it sucks.

It sucks trying to go through the motions day in and day out when all you want to do is stop living and stop trying. It sucks feeling like you’ve let everyone down, most especially yourself, your kids, and your husband because you just can’t fight off the opaqueness. It sucks to have to lie to everyone and tell them you’re okay when really you want to scream, no, I’m not okay, I’m a prisoner in my own head and I hate myself right now! It sucks thinking that even if you did die, no one on the other side would welcome you because you gave up, quit. And thinking my kids would be scared for life. But at the same time thinking they’d all be better off without me because they wouldn’t have to worry about why mom is crying… again. I’m an extrovert. I’m energized when I’m around people, and have good conversations with people. But lately, I’ve started avoiding people. Working out hasn’t been that stress reliever it once was. All I worry about is how much weight I’ve gained for no particular reason, and fretting over trying to eat healthy when I have no desire to cook or prepare meals, go shopping, or clean up after a meal. It’s just too overwhelming. But then I stress that I’m not doing all I can to have a healthy body and mind.

And the maddening cycle continues. With the string of “you’re worthless”, “you can’t do anything right” and “what is wrong with me?!” over and over and over and over. All day. Every day. It’s worse than the scariest movie you ever saw.

Yesterday afternoon, I watched a video that also brought tears to my eyes. And for the first time in a long time, I started feeling something I’ve almost forgotten what it feels like: hope. I have said some of the same things he did – God, why would you want to help me? I feel so worthless, I’ve made so many mistakes. I can’t feel you anymore. My prayers have been filled with those teary pleas lately. When he mentions that Heavenly Father was with him every step of the way, I started crying. And the words of a song primary aged children in our church often sing came to my mind:

1. Heavenly Father, are you really there?
And do you hear and answer ev'ry child's prayer?
Some say that heaven is far away,
But I feel it close around me as I pray.
Heavenly Father, I remember now
Something that Jesus told disciples long ago:
"Suffer the children to come to me."
Father, in prayer I'm coming now to thee.

2. Pray, he is there;
Speak, he is list'ning.
You are his child;
His love now surrounds you.
He hears your prayer;
He loves the children.
Of such is the kingdom, the kingdom of heav'n.


Then a friend of mine posted a blog that really got to me also. And now, I feel like I’m getting closer to having the strength and desire to climb out. But I know it’s going to be hard. I’m scared. Scared if I start trying, I’ll fall back in and won’t be able to climb out next time. I know all anybody has is hope and faith, which are two things that are extremely difficult for anyone with depression to feel. At this point, I figure all I can do is hope I’m one of the lucky ones – one of those who for some unknown reason, has the strength to get out of the darkness, rather than succumbing.